The woman in the hardware store sauntered by our cart, stopped, and leaned in toward me. “Can I ask,” she said, “what’s wrong with your baby?”
https://www.yahoo.com/beauty/people-always-ask-whats-wrong-151441662.html
5 Facts About The Disorder That Makes Kids Want Food 24/7
Prader-Willi syndrome is a spectrum disorder that requires more than a locked fridge
Fantastic short article about Prader-Willi Syndrome. #pws #prader_willi #praderwilli http://ow.ly/ZE6DO
Special Needs Kids : Looking Beyond The Deficits | Taking The Diss Out Of Disabled http://ow.ly/JJPLx #spec_needs #sped #disabled
Special Needs, how can this word be defined? On one hand, it is perceived as deficiencies. The focus is on what the child cannot do. This broad term can be indicative of emotional, physical, cognitive and sensory issues. These challenges may present themselves individually. Individuals can present with co-morbid (more than one) challenges and very frequently do.
Genome-wide survey of DNA methylation in PWS Foundation for Prader-Willi Research http://ow.ly/BSu7H #research #pws #genetic #methylatio
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In the present research study, we hypothesized that the abnormality in PWSCR may produce cascading effects on DNA methylation in other regions of genome. Because DNA methylation can turn on or off expression of genes, we aim to find regions related to the changes in DNA methylation. We will examine the DNA methylation profile in 16 individuals with PWS along with their siblings without PWS (total 32 individuals). We anticipate the results from this study will help find the downstream changes mediated by the abnormality of PWSCR and ultimately lead to the novel targets for treatment.
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Ben’s Story, Youth Ambassador, Prader-Willi Syndrome – YouTube http://ow.ly/zkBDo #pws #praderwillisyndrome #prader-willi
Parents Of Girl Born Without Nose Tell Others Not To Give Up On Babies With Rare Condition http://ow.ly/zimmC #arhinia #nose #nonose
Between 30 and 40 million people in Europe suffer from rare diseases – many of them children. As most of these diseases have genetic origins, gene therapy is a major hope for their future cure.
Source: www.medicalnewstoday.com
Essentialis Announces the Dosing of the First Patient in a Clinical Study of DCCR in PWS – Press Release – Digital J http://ow.ly/yXGMR
The Lizzie Project by Sara Bordo — Kickstarter http://ow.ly/x3CBt #lizzie #support #beauty #support #special needs #unnamed syndrome
See on Scoop.it – A Special Life
Scientists at the Hebrew University of Jerusalem have reported a major breakthrough in understanding the molecular basis for Prader-Willi syndrome (PWS), perhaps the most studied among the class…
See on www.medicalnewstoday.com
A collection of ideas and thoughts on technology in education.
Promoting Acceptance And Tolerance For Special Needs Individuals One Article At A Time
A Fusion of Creativity and Education
Truth-telling in Motherhood
IEP: Individual Education Program for special education students. Tips for navigating and negotiating IEP meetings, and paperwork. Being heard and participating is key to being a member of the team.
A Beautiful Hurricane 